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Risperdal (Risperidone) withdrawal

Re: Risperdal (Risperidone) withdrawal

Postby Squeakykin » Jul 04, 2013 11:22 pm

It has been over 2 years since I saw these posts and I was really getting somewhere with the Risperdal tapering. Unfortunately, last year I forgot to take my reduced amount of medication and had a whirlwind withdrawal adventure and ended up in 2 hospitals. The first one in Florida and then right after that a second hospital in NYC. The hospital in NYC put me on heavy doses of Haldol and wouldn't let me out of the hospital unless I agreed to a court order to be on forced meds in ACT/AOT. So since May of 2012 I have been forced medicated in my home with Haldol.

After being shot up I always feel overdosed so I take 2000 mg of Vitamin C every 2 hours until i get loose bowels, then cut back. Vitamin C is a detoxifier. I am also taking chlorella to detoxify. I am so upset that I got caught up with AOT ACT because I can't control how much drug goes into me now. I just saw on Mad in America's website a study that was just published that says people with Schizophrenia do much better cutting back on their meds than those who are on maintenance doses.

http://iepa-vcl.eppic.org.au/content/re ... chotics-vs

Now if only US psychiatrists believed these studies and did something to reduce the torture that their patients are undergoing on maintenance drugs.
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Re: Risperdal (Risperidone) withdrawal

Postby - » Jul 05, 2013 12:08 am

I'm so sorry this happened to you. I appreciate the vitamin c and chorella suggestion. I need to get on some vitamins, I was going to get some emergen-c bc I hate taking vitamin pills. Thanks for posting!
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Re: Risperdal (Risperidone) withdrawal

Postby ObjectsInMirrors » Jul 14, 2013 6:07 am

I discuss tapering off of risperdal extensively on my thread in this forum: you can read about it here and on going in the thread so this is a cross post viewtopic.php?f=64&t=27275#p242404

I have currently been tapering from risperdal for 14 months. Starting dose 3mg. Current dose .5 mg. I expect to be completely off of risperdal in less than a month. I had several periods of multiple months with no tapering due to external stress or crisis (mostly unrelated to taper). However- I've never had to increase the dose more than by .125 mg to a prior taper.I had been on risperdal for 10 months at start of taper and had been on various antipsychotics for years prior.


Crucial to my success
-SLOW STEADY TAPERING. Making larger cuts and holding was not doable for me. At certain periods I was using water titration to taper something like .003 mg a day for a month and for the last 6 weeks or so I have been tapering 1/16 of a mg every three days. (the smallest dry cut I can make)
-supportive therapist
-supportive friends
-not tapering when I knew I was already dealing with a lot of stress

Improvements since tapering
-drastically less suicidal
-making friends much more easily
-having a sex drive and romantic interests again
-much less mood swings
-happier
-more spontaneous
-some creativity that had been completely deadened by risperdal returning
-no more panic attacks
-drastically less dissociation
-20 or 30 pounds of weight loss that had been gained when starting the medication

Biggest withdrawal symptoms + how I coped
-how substances pass through my blood/brain barrier is now fucked up -
shortly after beginning to taper risperdal I noticed how my body metabolizes sedating medication is now completely fucked up and unpredictable. this effect of how substances which pass the blood/brain barrier being altered in coming off of multiple psychiatric drugs has been observed elsewhere and documented such as on beyondmeds.com For example: I am prescribed xanax to use as needed. It used to be that when I took xanax i would feel it in about a half hour- feel drowsy/sedated maybe two hours and that was that.I could take smaller doses for smaller effects. I have .5mg pills. Now i feel nothing unless I take 1.5 mg or more. How it affects me is different every time. Sometimes it will start working in 15 minutes and last for a few hours like it used to / is supposed to. other times it does absolutely nothing for 7 hours and then leaves me feeling so drugged I cannot function for an entire two days. Similarly other medications which are known to cause drowsiness such as benadryl, melatonin, and over the counter sleep aids are also totally unpredicable. which leads to

-Insomnia
the insomnia has been a big problem made hugely more complicated by the issue with how medications that cause drowsiness now being a total crap shoot about how they will impact me. insomnia= more anxiety, trauma, sensory issues, mood swings, etc and is a huge vulnerability problem for me. luckily the periods of insomnia have come and gone. trying to not get in a pattern of staying up late is crucial. melatonin was sometimes helpful. in a desperate emergency such as rare times when i was so sleep deprived and having a horrible panic attack and starting to have some hallucinations i would take more xanax than usual and try to sleep. I have reached a point of desperation where I have asked my psychiatrist to prescribe ambien to try to use for a couple of days to get me back on track. havent actually used it yet. There are other threads discussion insomnia solutions- for example herbs for sleep

-Trauma flare ups- very bad body memories. flash backs. horrible memories. feeling very triggered. getting startled easily. nightmares. very easily triggered. this was some of the biggest emotional struggle. to deal with trauma i would try to do things to stay calm and relaxed- talk to my therapist more- did some emdr- etc. there are other threads discussing dealing with trauma- for example this post i just made about coping with dissociation

-Rage really extreme rage (generally related to trauma). very intense urges to be destructive to the point of violent fantasies towards others. i'm not used to dealing with anger because meds completely numbed it out so this was a huge struggle i'm still learning to deal with. finding contained ways to express the rage has been helpful- such as breaking plates i specifically bought to destroy and writing rants and then reading them to supportive people.

Chronic pain/Fibromyalgia( unsure if related) during the 8 months I have developed chronic pain that has been diagnosed as and meets most of the criteria of fibromyalgia. it is not clear to me if this is related to withdrawal or not- but others have experienced pain related to withdrawal and written about it- again such as on beyond meds

for questions, more info about my process, etc check out my thread on my med withdrawal or pm me
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Re: Risperdal (Risperidone) withdrawal

Postby Squeakykin » Jul 24, 2013 5:56 am

I really admire you're steadfastness ObjectsinMirrors. And i envy you that you've gotten so far with your drug tapering. I don't have any supports and that is a disadvantage. I wont' be able to start tapering my drug (Haldol) at least for another year if I ever get out of the grips of AOT/ACT. it is very hard being patient because Haldol causes me to be pre diabetic verging on diabetic and my heart is weak now. I have tremors an am afraid of getting full blown TD within this year.i currently have insomnia and don't sleep most nights. Though i can sleep somewhat during the day which is really not good to sleep during the time the sun is out in that my body doesn't regenerate. That only happens when we sleep at night. I am getting tired now and will try to sleep. It is now almost 6 am.
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Re: Risperdal (Risperidone) withdrawal

Postby Ana Pascal » Jul 24, 2013 10:47 am

I'm going to taper from risperdone soon. I don't have time to read through this all now, but am replying so it comes up under "view your posts" and I can find it easier later on.

I really appreciate everyone sharing their stories. I've come off of clonapham and seroquel in the past and it helps me to know what I might face with this taper.
"Anarchists have a group? They assemble?" - Ana Pascal in "Stranger Than Fiction"
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Re: Risperdal (Risperidone) withdrawal

Postby sujahni » Jul 27, 2013 12:44 pm

I am so sorry that this happened to you and that you are forced to take medication. I had been tapering off Lithium and Risperdal, working on it for 5 or 6 years, going down and up in dose intermittently. At the same time working full time as a peer support specialist for the VA. So when I started having problems I'd increase the meds and when I was feeling better I would decrease. Eventually I was down to 300mgs of Lithium and about maybe a sixteenth of a mg of risperdal. I started having problems at work (for a variety of reasons) and decided to apply for a disability retirement at the advice of my psych prescriber. I then took a 10 day trip to Belize and there I decided to stop all meds. I came home and people told me that I looked better and seemed better then ever. I was getting weekly massages and swimming 2 or 3 times a week, having a drum circle of women at my house and feeling great. Then at about the 30 day mark I crashed. I started feeling very sick physically. I started having pain all over my body and sweats and heat running up and down my forearms. I went to an ayurvedic doctor and started taking some herbs he suggested. But I was on a downward slide. I started seeing a private counselor outside of my health plan, because my health plan mental health sucks, and I began dealing with trauma issues. But I was having trouble concentrating, started hearing too many voices and getting paranoid. I tried to handle it for about 9 months but I was really suffering and having suicidal feelings.I finally got myself into a hospital for a few days and they put me on Lamictal. I also got 2 friends that I met in AA staying at my house in an RV in the driveway. Thats helping me a lot to have people around who are supportive and helping me get to appointments and advocating for me. One of them is also dealing with mental health issues. She was off meds for a while and now back on some. Recently I also have been having extreme abdominal pain which is probably a gastrointestinal issue so I have to be very careful about food
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Re: Risperdal (Risperidone) withdrawal

Postby Squeakykin » Jul 29, 2013 1:46 am

Hi sujahni. Thanks for your concerns. I see you have some very serious concerns of your own. Sometimes in the drug tapering it is important to be able to allow yourself to take a small amount of your drug of choice to get back through tumultuous rapids to get to clear water. Especially if you find that you are falling down a path that you don't want to go.When I was tapering I started getting symptomatic and disorganized and I knew that I had missed that day's dose of Risperdal. But I was too disorganized to measure it out and I thought I was in control, but I wasn't. I got impulsive and got in a cab with my 2 cats to the airport and flew to Miami that night with no medication. Surprisingly I managed to get hotels and get by but my thinking was skewed from the withdrawal and I was hospitalized in Florida for 6 weeks and I lost one of my cats causing my deepest grief. If only I took some medication that night instead of thinking I was too big to take it.
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Re: Risperdal (Risperidone) withdrawal

Postby Squeakykin » Feb 14, 2014 3:48 am

I have been writing a video blog since 2011. Please check it out at:

http://sweetwellness.wordpress.com

subscribe to my blog and write comments. This blog is all about withdrawal from a neuroleptic drug.
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Re: Risperdal (Risperidone) withdrawal

Postby Squeakykin » Dec 15, 2014 3:03 am

It has been almost a year since I wrote on this website. I had my last forced injection of Haldol on March 6, 2014 and the doctor at AOT allowed me to see my own psychiatrist starting March 12. My new psychiatrist is helping me taper off Haldol and I am taking compounded prescriptions and tapering by .0625 mg every 3 weeks. I am now down to 3.625mg of Haldol.

I graduated from AOT Aug. 24, 2014 but I still see a social worker once a month for assistance with my unpaid Miami hospital bill and to get some social interaction. She is a cat person, so she plays with my cat too.

I have been struggling with insomnia and my doctor is prescribing stronger and stronger supplements. I am also going to try homeopathy for sleep:

Homeopathy for sleep:

Nux Vomica 30C for tension, feeling overworked, (stimulant use in the day)

Ignatia Amara for feelings of distress, emotionality around insomnia

Kali Phosphoricum 30C for nervous fatigue (mental fatigue from demands)

Ambra Grisea 30C for sleepiness that disappers when you lay down

Arsenicum Album 30C for awakening with anxiety between 1-3a

Gelsemium 30C for feeling worried about what is coming (can also take this for performance anxiety)

5 pellets one hour before bed and once again before bed.


The stronger supplements I am trying are:

Sedalin 2 nightly
Phenitropic 1-3 nightly (this is phenibut which is worth trying before medication).

She also prescribed the drug Atavan if I haven't slept for several days and as emergency to prevent hospitalization. But it hasn't gotten that bad yet.

I am also taking Melatonin spray 3mg daily.
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Re: Risperdal (Risperidone) withdrawal

Postby dillion » Jan 19, 2015 2:34 pm

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